A list of autoimmune disorders and Australian resources

Whether common or rare, autoimmune disorders tend to have a comprehensive network of support organizations which range from registered charities, to funded research bodies, and patient support groups. These present excellent resources to better understand the nature of the disorder(s), current state of knowledge and shared lived experiences. It is impossible to cover a full breadth of the resources available due to the sheer volume and changes in classification, however this section should give a good starting point to comprehend the diversity of illnesses, co-morbidities and support structures.

A comprehensive and externally curated list of currently recognized autoimmune disorders

Arthritis Australia

Non-for-profit organization focusing on arthritis in general, with rheumatoid arthritis as a subset. They discuss symptoms, diagnosis and next steps for patients to create an action plan.

The Australasian Society of Clinical Immunology and Allergy

Professional body promoting the highest standard of medical practice, training, education and research, to improve the health and quality of life of people with immune system disorders.

Australian Addison’s Disease Association

A charity providing information and latest research information for Addison’s disease patients and medical professionals.

Australian Crohn’s and Colitis Association

Charity organization focused on patient education, providing resources for lifestyle improvements, advocacy and research.

Autoimmune Resource & Research Centre

Non-profit organization aiming to improve the health & quality-of-life of individuals with autoimmune disease, through education, support, empowerment, advocacy and access to the latest screening, therapeutic, psychological and research-based strategies.

Coeliac Australia

Charity organization providing support and information services to coeliacs to improve quality of life. Also raise funds for research, raise awareness and education about the disease.

Diabetes Australia

National body providing patient education and resources to minimize the impact of diabetes on quality of life, in conjunction with health professionals.

Emerge Australia

A charity focused on myalgic encephalomyelitis/chronic fatigue syndrome including a patient biobank and registry.

The Lupus Association of NSW

Non-government, not for profit, self-help organization focusing on lupus patient support, education and research for a cure.

MS Australia

A national voice for people with multiple sclerosis, who focus on advocacy, awareness, communication and research collaboration.

Rare Voices Australia

Peak body for Australians living with rare diseases, including a subset of autoimmune disorders. Collaboratively engaged in the National Strategic Action Plan for Rare Diseases.

Didn’t find resources for the autoimmune disorder you were looking for? Get in touch if you want a hand and we’ll have a look.